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I have taught myself to skip, baked lots of cakes, and played lego!


Emily was diagnosed with NF1 at 1p months old. Doctors observed cafe au lait spots during emergency treatment for another medical problem, and we also showed them the plexiform neurofibroma on her leg from birth. She is always trying her best, and keeps us all busy! Emily finds it hard to coordinate her arms and legs at times, especially when she is tired. So amazing to see her skipping!

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